Amyloidosis Centers by Region

Registries

• • The Registry of mutations of amyloid proteins
  • The Registry of mutations of hereditary auto-inflammatory diseases
  • The Familial Amyloidotic Polyneuropathy World Transplant Register (FAPWTR) and the Domino Transplant Register

Societies

• • The German Society of Amyloid Diseases
  • Italian Society for Amyloidosis (SIA)
  • Japanese Society of Amyloidosis

Support Groups

• • The Amyloidosis Foundation (USA)
  • Amyloid Research Consortium
  • Amyloidosis Support Groups (USA)
  • Amyloidosis Alliance
  • The Australian patients website of Amyloidosis Australia
  • Hereditary Amyloidosis Canada (Canada)
  • Pacific Northwest Amyloidosis Support Group
  • The on-line mailing list for patients with amyloidosis in the USA

Other

• • Mackenzie’s Mission/Amyloidosis Speakers Bureau
  • All Things Amyloid Podcast

Suggest changes or additions to this page