Amyloidosis Centers by Region

Registries

• • The Registry of mutations of amyloid proteins
  • The Registry of mutations of hereditary auto-inflammatory diseases
  • The Familial Amyloidotic Polyneuropathy World Transplant Register (FAPWTR) and the Domino Transplant Register

Societies

• • The German Society of Amyloid Diseases
  • Italian Society for Amyloidosis (SIA)
  • Japanese Society of Amyloidosis

Networks

• • The Australian Amyloidosis Network

Support Groups

• • The Amyloidosis Foundation (USA)
  • Amyloid Research Consortium
  • Amyloidosis Support Groups (USA)
  • Amyloidosis Alliance
  • The Australian Amyloidosis Network Support Services
  • Hereditary Amyloidosis Canada (Canada)
  • Pacific Northwest Amyloidosis Support Group
  • The on-line mailing list for patients with amyloidosis in the USA

Other

• • Mackenzie’s Mission/Amyloidosis Speakers Bureau
  • All Things Amyloid Podcast

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